Health Policy blog covering advocacy developments and health system initiatives around the world in the areas of:
Health Policy blog covering advocacy developments and health system initiatives around the world in the areas of:
“These pages bring together concepts from across the various blogs and provide additional references for further information.”
Learn more about the definition of a rare disease, how it affects individuals throughout their life, the top needs of the rare disease community worldwide, the key international policy milestones that support these needs, and the particularities of this population in regulatory and HTA discussions.
Learn more about important interventions that support newborn health, including genetic screening and the Kangaroo Mother Care Method.
Learn more about the definition of ‘health technology’ and ‘health technology assessments,’ the importance of involving patients in HTA and how to evaluate the impact of their involvement, and the different ways of involving patients during HTA processes.
Understand the importance of partnering with the patient community across the drug development and access continuum, the involvement of patients in regulatory reviews and health technology assessment dialogues, the various methods for patient involvement, and the guiding principles to support compliant partnering with patient communities.
Interview with Dr. David Bick, Principal Clinician, about Genomics England’s pilot programme to test out the use of genomics in newborn screening in the UK.
Interview with Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement, about EveryLife’s efforts to enhance the existing newborn screening program in the US.
Interview with Ann Single, HTAi Patient and Citizen Involvement Interest Group Chair and Patient Voice Initiative Coordinator (Australia), about ongoing gaps in patient and citizen involvement in health technology assessments around the world.
Interview with Flaminia Macchia and Matt Bolz-Johnson, Rare Diseases International, on achieving the UHC vision to leave no one behind as the United Nations adopted a resolution on Persons Living with a Rare Disease and their Families.
Interview with Dr. Nathalie Charpak, a longtime advocate of the Kangaroo Mother Care Method and Founder of the Kangaroo Foundation, about improving health outcomes in Colombia.
Interview with Mayur Mandalia, Technical Officer, about the WHO’s ongoing work to support the African Union’s efforts to build and expand home-grown capacity in the healthcare sector.
Interview with Dr. Karen Facey, lead researcher in IMPACT HTA project on a Framework for Health Technology Assessment (HTA) of Rare Disease Treatments.
Interview with Dannah Al-Angari, Model of Care Learning Specialist, Ministry of Health, on the Kingdom of Saudi Arabia’s ongoing work in reshaping its healthcare delivery model as a part of its Vision 2030 strategy.
Interview with Flaminia Macchia, Executive Director of Rare Diseases International (RDI) about leveraging health policy and frameworks to support improvements in the rare disease space.
Interview with Professor Larry Brown about expected health policy priorities under the Biden administration.
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