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Health Policy blog covering advocacy developments and health system initiatives around the world in the areas of:

  • Rare Diseases

  • Newborn health

  • Value Assessment (HTA)

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VLG CONSULTING Driving patient-centered healthcare change
Piloting Whole Genome Sequencing in Newborns in the United Kingdom
Apr 20

Apr 20 Piloting Whole Genome Sequencing in Newborns in the United Kingdom

Veronica Lopez Gousset
United Kingdom

Interview with Dr. David Bick, Principal Clinician, about Genomics England’s pilot programme to test out the use of genomics in newborn screening in the UK.

Decreasing disparities in newborn screening across the United States
Feb 15

Feb 15 Decreasing disparities in newborn screening across the United States

Veronica Lopez Gousset
United States

Interview with Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement, about EveryLife’s efforts to enhance the existing newborn screening program in the US.

Ongoing gaps in patient and citizen involvement in health technology assessments
Jul 29

Jul 29 Ongoing gaps in patient and citizen involvement in health technology assessments

Veronica Lopez Gousset
Global

Interview with Ann Single, HTAi Patient and Citizen Involvement Interest Group Chair and Patient Voice Initiative Coordinator (Australia), about ongoing gaps in patient and citizen involvement in health technology assessments around the world.

Working toward Global Equity in Rare Diseases
Dec 12

Dec 12 Working toward Global Equity in Rare Diseases

Veronica Lopez Gousset
Global

Interview with Flaminia Macchia and Matt Bolz-Johnson, Rare Diseases International, on achieving the UHC vision to leave no one behind as the United Nations adopted a resolution on Persons Living with a Rare Disease and their Families.

Improving Newborn Health Outcomes through Kangaroo Method Care Method in Colombia
Nov 9

Nov 9 Improving Newborn Health Outcomes through Kangaroo Method Care Method in Colombia

Veronica Lopez Gousset
Colombia

Interview with Dr. Nathalie Charpak, a longtime advocate of the Kangaroo Mother Care Method and Founder of the Kangaroo Foundation, about improving health outcomes in Colombia.

Strengthening Africa’s Health System Capacity
Sep 6

Sep 6 Strengthening Africa’s Health System Capacity

Veronica Lopez Gousset
Africa

Interview with Mayur Mandalia, Technical Officer, about the WHO’s ongoing work to support the African Union’s efforts to build and expand home-grown capacity in the healthcare sector.

Looking Beyond Cost Effectiveness: Recommendations for Appraisal of Rare Disease Therapies
May 31

May 31 Looking Beyond Cost Effectiveness: Recommendations for Appraisal of Rare Disease Therapies

Veronica Lopez Gousset
Global, Europe

Interview with Dr. Karen Facey, lead researcher in IMPACT HTA project on a Framework for Health Technology Assessment (HTA) of Rare Disease Treatments.

Re-envisioning the Care Delivery Model in Saudi Arabia
Mar 31

Mar 31 Re-envisioning the Care Delivery Model in Saudi Arabia

Veronica Lopez Gousset
Middle East

Interview with Dannah Al-Angari, Model of Care Learning Specialist, Ministry of Health, on the Kingdom of Saudi Arabia’s ongoing work in reshaping its healthcare delivery model as a part of its Vision 2030 strategy.

Leveraging Global Policies to Support Efforts of Rare Disease Community
Feb 26

Feb 26 Leveraging Global Policies to Support Efforts of Rare Disease Community

Veronica Lopez Gousset
Global

Interview with Flaminia Macchia, Executive Director of Rare Diseases International (RDI) about leveraging health policy and frameworks to support improvements in the rare disease space.

Healthy Policy beyond COVID under Biden Administration
Jan 21

Jan 21 Healthy Policy beyond COVID under Biden Administration

Veronica Lopez Gousset
United States

Interview with Professor Larry Brown about expected health policy priorities under the Biden administration.

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Views represented in blogs belong to the individuals interviewed unless otherwise stated.

Original content and images ©Veronica Lopez Gousset 2023. All rights reserved.

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