Health Policy blog covering advocacy developments and health system initiatives around the world in the areas of:
All tagged Rare Diseases
Interview with Annie Kennedy, Chief of Policy, Advocacy, and Patient Engagement, about EveryLife’s efforts to enhance the existing newborn screening program in the US.
Interview with Flaminia Macchia and Matt Bolz-Johnson, Rare Diseases International, on achieving the UHC vision to leave no one behind as the United Nations adopted a resolution on Persons Living with a Rare Disease and their Families.
Interview with Dr. Karen Facey, lead researcher in IMPACT HTA project on a Framework for Health Technology Assessment (HTA) of Rare Disease Treatments.
Interview with Flaminia Macchia, Executive Director of Rare Diseases International (RDI) about leveraging health policy and frameworks to support improvements in the rare disease space.
