Health Policy blog covering advocacy developments and health system initiatives around the world in the areas of:
The 14th annual edition of the World Orphan Drug Congress Europe gathers multi-stakeholders in orphan drugs & rare diseases to discuss Strategy, Advocacy & Partnering for the global Orphan Drug Industry.
Oral presentation: Did It Matter? Developing a Common Framework for Characterizing Impact of Patient Involvement in Health Technology Assessment
The Patient and Citizen Involvement in Health Technology Assessment (HTA) Interest Group within HTA International (HTAi) proposes a framework for reporting on the impact of patient involvement in HTA. A common framework to characterize the impact of patient involvement may enable greater harmonization of evaluation and reporting across HTAs, facilitating useful comparisons and important variables to inform meaningful improvement.
E-poster presentation: Creating a Capability Building Program based on Patient Community’s Actual Needs and Priorities: The Sjögren Europe experience
During the webinar we will cover:
Definition of what it means to be a consultant
Different types of consulting in the healthcare space
Tips for individuals starting their consulting careers on how to excel and grow in their roles
This webinar is intended for individuals just starting their careers as consultants but anyone is welcome to join!
The 13th annual edition of the World Orphan Drug Congress Europe gathers multi-stakeholders in orphan drugs & rare diseases to discuss Strategy, Advocacy & Partnering for the global Orphan Drug Industry.
Role: Poster Author
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
Role: Workshop co-facilitator
Held each year in June, the HTAi Annual Meeting is a key international gathering for sharing latest research, advancing discussions in policy and methods, and building global networks. The Annual Meeting supports the mission of HTAi to promote the development, understanding and use of HTA around the world as a means of fostering innovation and effective use of resources in health care.
Role: Staff team
Role: Presenter
Patient, industry and HTA body representatives will present case studies portraying the impact of patient and citizen involvement in HTA. This will be followed by a summary presentation on types of impact of patient involvement in HTA identified by the Impact Working Group of the HTAi Patient and Citizen Involvement in HTA Interest Group.
